The Hollywood Reporter - 6 Rare Illnesses That Hollywood Has Put in the Spotlight — and 1 It Hasn't (Yet)

Rob Ashe's daughter was 4 days old when he first saw the word "arthrogryposis," written on her incubator in the NICU. Elliot, now 4, had been born with severe contraction in her major joints, resulting in extremely low muscle tone. Only one in 3,000 newborns has the condition. "There still isn't a ton of research," says Ashe, an Emmy-nominated editor on TBS' Conan. Geneticist Dr. Judith G. Hall, who has studied arthrogryposis extensively, had one big piece of advice for Ashe when she learned about his line of work: “You need to get celebrities involved.”